Occasion: Support

My niece faces a second major surgery for scoliosis August 9th in NYC. She has a very rare chromosomal disorder called Trisome #9. She will have spinal rodding and repair done in an effort to save her life. Children with this disorder rarely survive birth or infancy. We have been blessed to have Anemarie for 15 years, due entirely to my sister and her husbands ability to cope and succeed in overcoming all adversities. They have taken on Doctors who misdiagnosed her, found she had no growth hormone and gave her shots so she would grow, started a support group and opened a agency to help other parents with special needs children. They have travelled to conferences, given seminars and made this journey with Anemarie for 15 years. I am sending this blanket to my sister in hopes that it will help her through this most difficult surgery. Anemarie cannot speak, but does sign some. It makes post operative care difficult. Anemaries lungs and heart are now compromised, and we pray that his surgery will help. It is unknown what course Anemaries life will take as no one has survived this long with this problem. We can only tell you that her mom and dad are her guardian angels. I knew when I found this web site that it was just the thing to give my sister comfort at a time when there is little else I can do. Thank you for the opportunity to be able to offer some support at this critical time
God Bless
Jeanne

Submitted by Jeanne B., Greenville NY